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Angel Spun Ex Member	Re: Not sure how to start,but here goes!!! Reply #120 - Jun 26^th, 2006 at 4:13pm I am so jealous! It's been in the 90's here all week. It sounds like you have a tropical storm, which are definitely not my favourite kind, but better than frying & burning in 90° heat! Enjoy it while it lasts.
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Curlgirl64 Stardust Offline Practice Yoga,give and receive Reiki Posts: 2974 Brooklyn,N.Y. Gender:	Re: Not sure how to start,but here goes!!! Reply #121 - Jun 26^th, 2006 at 7:09pm Lol! Angel the only thing here in Brooklyn that's tropical is maybe the plastic palm tree somebody has in their living room!!!! I can't take all this rain,but then again I can't handle 90 degrees either!!!
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Angel Spun Ex Member	Re: Not sure how to start,but here goes!!! Reply #122 - Jun 27^th, 2006 at 3:21am I can take the rain. You're more than welcome to send all of it this way. In one part of my native East County, the temps reached 103° today and yesterday.
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Curlgirl64

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Re: Not sure how to start,but here goes!!!
Reply #123 - Jun 27^th, 2006 at 1:40pm

Angel, Holy Moly! That's too hot!! Shocked

Everyone must live with A/C 24/7!!!!
I got those Bunjiis for my hair yesterday!!! Woo Hoo! Can't wait to try them! I've ben getting alot of my stuff delivered that I won on E-Bay! I think I have about 5 more things coming not including the LL hairsticks that should be here anyday!.......... They are the Silver Bubbles hairstix,can't wait to see them up close!
I also got approval last Thursday in the mail from PAN to help with the expense of my new med that I'll be starting tomorrow! Have to go the hospital to be trained to do subcu injections. I've been doing my own intermuscular injections for almost 7 years. It's funny,next month would have marked 7 years that I' taking Avonex and now I'm going on Rebif. This is going to be 3 times a week instead of once a week. So now I'll probably feel like I have the flu 3 times a week instead of 1day out of the week. Roll Eyes

I think the med is 3 or 4 times the dose of what I'm taking now,so this should proof to be interesting!!
Any way for the hair, with all this rain and humidity my hair has felt like I don't know how to describe it other than eeeeeeeeeeeeeuuuuuuuuuuuuuuuuuuuuhhhhhhhhhhhhhh! I was so glad to wash and deep condition it after I did my Pilates Practice. Feels better. It's in a bun and I feel like I can breathe better! Strange as that sounds,but when my hair feels like the way it did before I washed it I feel like I don't breathe or am centered properly. Undecided

it's a yoga thing! Best as I can say. Anyway,gotta go!

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Angel Spun Ex Member	Re: Not sure how to start,but here goes!!! Reply #124 - Jun 27^th, 2006 at 8:58pm Quote: Angel, Holy Moly! That's too hot!! Everyone must live with A/C 24/7!!!! If only... Right now, I live in a ghetto apartment on the 2nd floor with NO A/C...and my Weather Bug currently reads 92°. This sux.
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Curlgirl64

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Re: Not sure how to start,but here goes!!!
Reply #125 - Jun 27^th, 2006 at 9:13pm

oh big time,sux!!! Sad

I hope it cools down for you soon! I used to love the warm weather(mind you ,not hot hot hot),but since MS came around and reared its ugly head;I can't tolerate the heat at all. Sad

Just like you feel like an ice cube melting,I feel like a vampire with daylight with this heat!!!
I'l be thinking of ya,mentally sending cool air your way

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Angel Spun

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Re: Not sure how to start,but here goes!!!
Reply #126 - Jun 27^th, 2006 at 9:29pm

Quote:

I feel like a vampire with daylight with this heat!!!

lol Boy can I relate to that! Wink

No, seriously. My skin has no melanin in it, so I literally get burnt standing in the sun for 10 seconds. Plus, the meds I'm on expressly forbid direct contact with the sun. I rely on the shade and the safety of the night. And also on very high SPF. Tongue

I can only imagine how it must be with MS.

Thank you so much for your "cool air" wishes.

It's actually supposed to rain here tomorrow.

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Curlgirl64 Stardust Offline Practice Yoga,give and receive Reiki Posts: 2974 Brooklyn,N.Y. Gender:	Re: Not sure how to start,but here goes!!! Reply #127 - Jun 27^th, 2006 at 11:09pm yeah for rain for you!!! The good thing about not being in the sun is that you and I will look alot younger than we are(no sun damage) and not look like we're 90 when we hit 50!!!
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Re: Not sure how to start,but here goes!!!
Reply #128 - Jul 4^th, 2006 at 4:03pm

Today is an ulta curly day!!! I washed my hair with the shampoo bar,Rosemary Lavender and Aloe. I then used some Ouidad curls for kids condish. Oiled the ends with my "oil mixture" sprayed alittle Ojon oil ( I forget the full name of it) and used some aloe vera gel and viola!!! Cascading loose curls all over!!! Grin

This is a pic for the digital camera and then when I figure out how to post it I'll be showing it! All else is calm here for now....a few fireworks,but nothing ultra loud yet. They are illegal in NY,but it seems that alot of people light them off anyway. My poor dog and birds take a few days to recover from the noise Sad

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nancyn28

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Re: Not sure how to start,but here goes!!!
Reply #129 - Jul 4^th, 2006 at 6:05pm

Curlgirl64-

Please forgive me for butting in here, but I was reading that you're switching from Avonex to Rebif and I wanted to wish you luck.

I don't have MS but I work for a neurologist who has many MS patients. We have patients on all the different MS drugs except Tysabri (which will be making it's return soon....)

Anyway, just wanted to wish you the best and prayers for keeping further exacerbations away! Grin

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Curlgirl64

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Re: Not sure how to start,but here goes!!!
Reply #130 - Jul 4^th, 2006 at 6:51pm

hey Nanc,
thank you so much and you are not butting in!!

I've wanted to jot in a little note to you ,but thought you might think I WAS butting in!!!lol
The switch was so easy it was funny regarding Avonex vs. Rebif. Going from intermuscular to subcu is a "piece of cake"! I've always done my own shots and Im glad I am able to. I'm on the tritration pack so it feels like I'm not taking anything,but when I get up to 144 mcg I'm sure the flu like symptoms will be back with a vengence! Sad

Yes Tysabri is due back soon. I was skeptical before the tragedies and I am now. I don't particularly like that drug,but opinion only here.
Feel free to jump in to see me on the boards anytime Grin

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Re: Not sure how to start,but here goes!!!
Reply #131 - Jul 5^th, 2006 at 2:05pm

Rain again today!!!! Still curly,but starting to feel sticky and that ick feeling. I put my hair up in a bun with sticks today,just to get it off my back. Feels much better. Next wash I think will be with an acv rinse and deep conditioning. With all this rain,I think I'm going to be doing the backstroke soon! Grin

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Re: Not sure how to start,but here goes!!!
Reply #132 - Jul 11^th, 2006 at 10:53pm

Well it's been a while,but things have been busy! Went to a Cyclones baseball game last night in Coney Island,it was good. They won 5-4 and the weather was beautiful! Thank God for hairsticks because it was alittle windy! Washed with a new shampoo bar yesterday,I think it was Rosemary Lavender. Very nice. Did a vinegar rinse and alittle conditioner. Oiled the ends and sprayed all with Ojon Moisturizing Mist. Put it all up in a bun and there it stayed until late last night. The game ended about 10pm and I was home by 10:20 so I just braided it and went to bed.
It's alittle humid today so I kept my hair up in a bun again. We'll see what tomorrow brings.

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khrome Stardust Offline 1bM/Ciii Posts: 1035 santa barbara, ca Gender:	Re: Not sure how to start,but here goes!!! Reply #133 - Jul 12^th, 2006 at 6:26am Hi CG! Just popping in to say hi. I hope your med transitioning works out well. I had to switch meds a lot early in the year and side effects sucked! But it just took some time getting used to. So did they say the flu symptoms are temporary?
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Curlygirl22 Diamond Offline Posts: 606 Gender:	Re: Not sure how to start,but here goes!!! Reply #134 - Jul 12^th, 2006 at 10:20am Hello CurlyGirl, I was just reading in your journal that you have been giving yourself shots for 7 years. OMG what a tough cookie you must be. Im just a big baby. May God give you strength.
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